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Endometriosis: four laparoscopies—does anyone know what's wrong with me? ENDOMETRIOSIS: FOUR LAPAROSCOPIES—DOES ANYONE KNOW WHAT'S WRONG WITH ME?
Sharon’s story: "Looking back on a five-year problem that had me hospitalized tour times for laparoscopics, I find it shocking that my now-diagnosed endometriosis could have been overlooked by a count of ten out of twelve doctors! What is amazing is that the first laparoscopy showed endometriosis, and some of the adhesions were cauterized at that time. Unfortunately, the doctor who said it was endometriosis attributed the adhesions to an infection, even though a blood test showed no such thing.
"Four months later, the pain started again and the doctor did a second laparoscopy. His words were 'no findings,' meaning that he couldn't see the endometriosis, not necessarily that it wasn't there. J went to another doctor, this time traveling to a big medical center in the Midwest, and he had vague explanations about my pain after giving me a third laparoscopy. For about five months, I started to improve by some miracle. I was taking pain pills until last summer and then the crash came. The pain was so intense I couldn't stand up I was put on antibiotics again. The doctor said my case was 'too peculiar' and he increased the dosage of painkillers.
‘A cousin sent me to her doctor. He actually listened to all of my symptoms (no one else really heard them when I recounted them) and he diagnosed endometriosis, but sent me to another doctor to have a fourth laparoscopy to be sure. It showed endometriosis, with one big implant near my left tube and another two implants on my right ovary.
"What is really disturbing to me is mat all these doctors were highly recommended. The third doctor even told me that if the second doctor found nothing after a laparoscopy, then nothing was there! The doctor who gave me the fourth laparoscopy put me on Danocrine for four days, but I had such bad reactions to the drug that he decided birth control pills would be better. I was still in pain after taking these pills, so be changed the brand. Now he wants to do a fifth laparoscopy 'to get an objective view of the pain/ and if mat's not enough, he wants to perform a laparotomy!"
Sharon's chance for treatment and possible cure was sabotaged by her first doctor's misdiagnosis. Sadly, it set her on an unwitting course that would be repeated again and again with other doctors. As it happened, the first laparoscopy revealed adhesions—fibrous bands that can bind organs. Adhesions arc unrelated to pelvic infections, but they do signal the possible presence of endometriosis.
Endometriosis can sometimes be detected during a pelvic examination if the masses are large enough to be felt. In Sharon's case, the 'hidden disease" had infiltrated pelvic tissue and was detectable with the aid of a laparoscope. Since its nature is also to implant itself on organs and go unseen endometriosis can be missed by doctors who are not familiar with identifying and treating the disease. This happened to her three times.
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Treatment of endometriosis: danazol